Disclaimers:
These podcasts have been produced and funded by Galapagos and the speakers received honorarium for their contribution.
Job code: UK-INF-2020-09-0008
Date of preparation: April 2022
Sandra Robinson
Senior Nurse Researcher
Assist RA chair, Sandra, is passionate about the programme because it provides nurses with the opportunity to come together, share learnings and best practice and acquire the necessary skills and confidence to support gold-standard management of rheumatology patients
Katy Pieris
Affiliate patient
Katy is an RA patient and affiliate member of our ASSIST RA steering committee. She volunteers for NRAS and has had an active role in supporting fellow patients during the pandemic. Listen to her story in our first ‘Joint discussions in RA’ podcast: Discussions with a patient
Job code: UK-INF-2020-10-0030
Date of preparation: April 2022
Barbara Douglas
Clinical Nurse Manager
With more than 27 years rheumatology experience, Barbara's role as a Clinical Nurse Manager and Advanced Nurse practitioner allows her to support strategic planning of rheumatology from a nursing perspective to equip nurses with the necessary skills and confidence to work with the MDT to ensure that patients are always at the heart of the decision-making process.
Job code: UK-INF-2020-10-0120
Date of preparation: April 2022
Dr. Stuart Kyle
Consultant Rheumatologist
Interests include all areas of Rheumatology including inflammatory arthritis (Rheumatoid Arthritis, Spondyloarthropathies, Crystal arthropathies), non-inflammatory arthritis (Osteoarthritis), connective tissue diseases (Systemic Lupus, Sjogren’s, Scleroderma, Dermatomyositis) vasculitis and soft tissue rheumatism. He has been associate medical director for 3 years, which includes the role of appraisal lead for the Trust. During this time, Stuart has become increasingly interested in the provision of clinical performance and outcome evidence. In 2020 he won a BSR 2020 Best Practise award for his virtual clinics and integration with patient portal outcomes initiative.
Prof Peter Taylor
University of Oxford, Oxford, UK
Peter Taylor is the Head of Clinical Sciences at the Botnar Research Centre where he directs the Biomedical Research Unit Inflammation theme and leads the rheumatology clinical trials group and related translational research programme at the Kennedy Institute of Rheumatology within the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences. Professor Taylor has specialist clinical interests in rheumatoid arthritis and early inflammatory arthritis. Professor Taylor has over 20 years' experience in clinical trial design and international leadership in studies of biologic and small molecular therapies in RA and AS.
Job code: UK-INF-2020-11-0018
Date of preparation: May 2022
Sandra Robinson
Senior Nurse Researcher
Assist RA chair, Sandra, is passionate about the programme because it provides nurses with the opportunity to come together, share learnings and best practice and acquire the necessary skills and confidence to support gold-standard management of rheumatology patients
Job code: UK-RA-NA-202109-00016
Date of preparation: March 2022
Duration: 40 min
Dr Neil Stanley
Independent sleep expert
Dr Neil Stanley is an independent sleep expert and Director of Sleep Science at Sleepstation.org.uk. He has been involved in sleep research for 39 years, starting his career at the Neurosciences Division of the R.A.F. Institute of Aviation Medicine. In the early 1990s, he moved to the Human Psychopharmacology Research Unit, part of the University of Surrey, as Director of Sleep Research. He is past Chairman of the British Sleep Society (2000-2004) and a member of the European Sleep Research Society and the American Academy of Sleep.
Job code: UK-RA-NA-202109-00017
Date of preparation: March 2022
Duration: 40 min
Barbara Douglas
Clinical Nurse Manager
With more than 27 years rheumatology experience, Barbara's role as a Clinical Nurse Manager and Advanced Nurse practitioner allows her to support strategic planning of rheumatology from a nursing perspective to equip nurses with the necessary skills and confidence to work with the MDT to ensure that patients are always at the heart of the decision-making process.
Peter Boyd
EULAR PARE community
Peter Boyd was diagnosed with rheumatoid arthritis in 2011 and began volunteering almost immediately across all Arthritis Ireland services, including as a trustee from 2013 to 2019. Peter was also a trustee of EULAR (European Alliance of Associations for Rheumatology) Young Patients from 2016-2020 and is very active within the EULAR PARE community.
In September 2019, Peter began working with Arthritis Ireland managing the national helpline and frontline services. This has been particularly important throughout the Covid-19 pandemic and continues to be a challenge, but one Peter relishes as he is now working to support people in living better lives with arthritis, not merely existing as he was in 2011.
UK-RA-NA-202202-00004 | Date of preparation March 2023
Adverse events should be reported.
For Great Britain, reporting forms and information can be found at yellowcard.mhra.gov.uk or via the Yellow Card app (download from the Apple App Store or Google Play Store).
Adverse events should also be reported to Galapagos via email to DrugSafety.UK.Ireland@glpg.com or 0800 072 7878.
Adverse events should be reported.
For Northern Ireland, reporting forms and information can be found at yellowcard.mhra.gov.uk or via the Yellow Card app (download from the Apple App Store or Google Play Store).
Adverse events should also be reported to Galapagos via email to DrugSafety.UK.Ireland@glpg.com or 0800 072 7878.
Adverse events should be reported.
For the Republic of Ireland, reporting forms and information can be found at www.hpra.ie and can be reported to HPRA on +353 1 6764971.
Adverse events should also be reported to Galapagos via email to DrugSafety.UK.Ireland@glpg.com or 00800 7878 1345.
Galapagos and the Galapagos logo are registered trademarks of Galapagos NV.
© 2022 Galapagos NV. All rights reserved.
GB-IBD-FIL-202208-00005 |
Date of preparation: October 2023
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